I live in chronic pain. The reason for my pain, is Endometriosis. I was diagnosed through surgery when I was 17. I have decided to have this blog, so that those in my life can get a peek into my day to day issues that affect my life in every way.
Monday, March 3, 2014
But I had symptoms since:
Part way through my first menstruation cycle is when the pain really started to hit me. I was 14 in fact my birthday had just passed and I was feeling weird but didn’t think about it, I went to sit on the toilet and saw blood oozing into the bowl from between my legs. I burst into tears, as far as I was concerned that blood meant the beginning of the end when it came to being pain free, to do what I want when I wanted, the end of being able to wear what I wanted, the end of having good attendance at school or anything. Sure I didn’t know these things to be true in my case…. Well I didn’t know YET. But my mom had been very honest about how her period affected her life (she was diagnosed with endometriosis also) so I had reason to be scared. Sure there was no guarantee that it would mean I would have the same issues as her, but her mother had terrible periods that would leave her crippled in pain and unable to move, and so did her mother (so my mom, grandma, and great-grandma) all sounded like they suffered from endometriosis.
After I stopped crying and was able to tell my mom why I was crying in the bathroom I was able to find the amusing side of it all. We had recently moved to a very “white” town, that was really rather wealthy, or everyone I went to school with was, so while I was crying about the arrival of my menses, I knew other girls in my class were celebrating the arrival of threes, bragging about it and so on. For me it was my dirty secret, as none of the girls understood, I simply had to be making it up, as THEY didn’t lose control of their legs while on their period, or throw up…… As boys had nothing to compare it to I most often found them the most understanding so tried to stick with more guy then girlfriends.
Photograph credit: "Cubicle 5" by AbsentAsI on deviantart.com
Sunday, March 2, 2014
Day 2. I was diagnosed with Endometriosis in:
September 2004, at the age of 17. This is much younger than most are diagnosed, it’s well documented that it generally takes 8 years of having issues and looking for answers to get diagnosed, for many it takes much longer. I had things that no doubt helped with my early diagnosis, my mother who can be super pushy when it comes to me and my health, which her-self is diagnosed with endometriosis.
At 17 i had my very first exploratory laparoscopic surgery, while examining me on the inside endometrial cells were found already in many places they shouldn't be. The next few years i had more surgeries but rather than for diagnosis (surgery is the only way), these were to help treat the endometriosis by cutting or burning off the endometrial cells.
#endendo #endometriosis #endoawareness #whatisendo #awishnoted #chronicpain #pain
Saturday, March 1, 2014
Day 1. For me, living with Endometriosis is: daily pain and excess daytime sleepiness, then there are my "bad" days where i simply can't seem to function and often have a very hard time even standing up or walking due to the pain, the bad days i always try to reduce my pain with medication, heat, herbs and such but often it feels like nothing helps. All of this leaves me with a life of much isolation.