If you are someone who knows me and talks to other family of mine please read this and forget it, or keep it to yourself.
The things I am about to say in here few people know about and those people DO NOT include my parents or family in general.
I wrote this then decided to hold off posting this till I knew how my body seemed to be handling the new treatment.
(Written December 16 2010)
One week ago today I went to the doctors, a GYN and started on one "medication" to try to help out with my endometriosis. It’s a last resort treatment but it is better than the other alternative last resort things that are also not guaranteed to pan out (like a hysterectomy I have no intention of trying anytime soon).
This treatment is also a birth control used by many women it is known as the Mirena IUD.
It’s been one week ago today that I had it inserted and insertion was painful, but insertion doesn’t take that long, though I had extra pain since even the speculum hurts but I got through it holding S's hand and looking up at the ceiling reading and rereading the comics (this doctor has doctor related comics on the ceiling so when your being examined you have a distraction, its awesome).
The medication you insert the night before you have the IUD inserted started me cramping within an hour but I was able to cope with it. The actual insertion did hurt allot and I was vocal about it, though I was medicated so wonder how much worse it could have been if I had only taken Tylenol like he had suggested (I was on dilaudid, and a bunch of herbal sedatives along with gravel since I know pain makes me throw up at times). I expected bleeding after insertion but that never really happened yes, I had one really small clot at that was it. However the cramping after insertion is still happening I am hoping it will settle down.
Showing posts with label Back pain. Show all posts
Showing posts with label Back pain. Show all posts
Thursday, December 16, 2010
Sunday, April 18, 2010
Some of my Endometriosis Coping Essentials
1) One of the things I have used for the longest amount of time that I find very helpful since my periods have never like clockwork even while medically regulated.
a website : www.mymonthlycycles.com
I have used it for years so I can check when my last period was and also how long I was bleeding for and also how heavy I was bleeding and I can also add notes, all those features can be used with a free account and there is no time limit on using the site, though last week I did sign up for a 6month paid account since the features paying for look worth it to at least try out (will let people how I think it is later)
2) Rice bag heating pads, anyone who has endo knows of these unless they haven’t had their period very long at all. They can be bought in crafty type stores, online, through a pharmacy or you can even make them. They can get allot hotter than any water bottle and can hold heat longer and can be used often once after the other (though this will destroy them quicker but if you do destroy them you can always open them up, fill them again with some rice from your pantry, or cherry pits .... lots of options and sew it back up. I have made many and bought many, they come in all different shapes and materials.
3) Cloth pads, I started out with these when I was 19 I believe since wearing the disposable plastic ones just seemed to annoy me so much. For people who have a 2-3day period disposables wouldn’t seem as bad but for someone with a really heavy period to the point one must wear a pad when possibly it could arrive otherwise bleed through clothing on the way to the bathroom, and then when I was younger the normal 9 days of bleeding that was allot of time with pads on, and allot of garbage. It was generally about 14days of wearing pads give or take. So I started out making some and wearing them now and then and disposables now and then also. Now I generally buy my pads and they are amazing quality that way and last for a long time (haven’t worn one out yet). With care it is possible to even have unstained ones thanks to something else on my list. Cloth pads also fold up small and wet bags can be bought to store them in. They are very comfortable and can be bought/made to fit your needs or wants.
I have bought mine from:
www.lolasloft.etsy.com/ (just bought from, haven’t yet seen or used her pads)
www.NaturallyHip.etsy.com/ (bought from before, larger really indestructible pads)
www.crea8tivemama.etsy.com/ (bought from before, small pads)
Folded:
Wings Snaped so instead of sticky wings these secure the pad to panties these hold it in place:
4) For all of my cleaning bloodstain needs, come on girls you know this happens Oxyclean powder does the trick! Now that I use cloth pads I actually have fewer leaks because I have pads the size I need so my normal clothes need less stain removing however now I have those pads to clean. For stain free items you can get bloodstains wet hopefully before they dry and then wash in the machine with some Oxyclean and no worries about washing them with other items as long as they are not white. This also works for bedding or loungewear or bed pad (I just use a huge towel double folded under me when I sleep. The fact though is Oxyclean can very often remove old dried bloodstains even in pads. Simply soak item in water for a few minutes before washing with Oxyclean. For those fearing cloth pads means ugly bloodstained pads, this is not the case. When I was soaking pads after use until washing I went over a year and a half without any stains and my pads were lighter and multicoloured. I always buy my oxyclean at costco since its the very best deal and in powder foarm since it works and is so much cheaper.
5) Disposable heat pads that are activated by air (will say on package) and NOT the ones they sell/show on lower pelvic area designed for period pain since I have always found them to be way too small. I like the ones that stick on that are for backs (however the one I will show a picture of have changed their back stickers to wraps). The wrap is nice if you plan on changing clothing often, but the stickers I generally stick to my skin or to a pain of yoga pants I am wearing. I simply use the back heat pads on my front, and although I don’t use these often I do use them when I have to me out and about while either on period or know period is coming from the pain. They help and get nice and hot and very discreet. Though I did learn this weekend that trying to save money by buying a lower name brand is not necessarily worth the savings.
will add more later but need out in the garden at the moment since pain meds finaly kicked in!
what are your endometriosis coping essentials?
a website : www.mymonthlycycles.com
I have used it for years so I can check when my last period was and also how long I was bleeding for and also how heavy I was bleeding and I can also add notes, all those features can be used with a free account and there is no time limit on using the site, though last week I did sign up for a 6month paid account since the features paying for look worth it to at least try out (will let people how I think it is later)
2) Rice bag heating pads, anyone who has endo knows of these unless they haven’t had their period very long at all. They can be bought in crafty type stores, online, through a pharmacy or you can even make them. They can get allot hotter than any water bottle and can hold heat longer and can be used often once after the other (though this will destroy them quicker but if you do destroy them you can always open them up, fill them again with some rice from your pantry, or cherry pits .... lots of options and sew it back up. I have made many and bought many, they come in all different shapes and materials.
3) Cloth pads, I started out with these when I was 19 I believe since wearing the disposable plastic ones just seemed to annoy me so much. For people who have a 2-3day period disposables wouldn’t seem as bad but for someone with a really heavy period to the point one must wear a pad when possibly it could arrive otherwise bleed through clothing on the way to the bathroom, and then when I was younger the normal 9 days of bleeding that was allot of time with pads on, and allot of garbage. It was generally about 14days of wearing pads give or take. So I started out making some and wearing them now and then and disposables now and then also. Now I generally buy my pads and they are amazing quality that way and last for a long time (haven’t worn one out yet). With care it is possible to even have unstained ones thanks to something else on my list. Cloth pads also fold up small and wet bags can be bought to store them in. They are very comfortable and can be bought/made to fit your needs or wants.
I have bought mine from:
www.lolasloft.etsy.com/ (just bought from, haven’t yet seen or used her pads)
www.NaturallyHip.etsy.com/ (bought from before, larger really indestructible pads)
www.crea8tivemama.etsy.com/ (bought from before, small pads)
Folded:
Wings Snaped so instead of sticky wings these secure the pad to panties these hold it in place:
4) For all of my cleaning bloodstain needs, come on girls you know this happens Oxyclean powder does the trick! Now that I use cloth pads I actually have fewer leaks because I have pads the size I need so my normal clothes need less stain removing however now I have those pads to clean. For stain free items you can get bloodstains wet hopefully before they dry and then wash in the machine with some Oxyclean and no worries about washing them with other items as long as they are not white. This also works for bedding or loungewear or bed pad (I just use a huge towel double folded under me when I sleep. The fact though is Oxyclean can very often remove old dried bloodstains even in pads. Simply soak item in water for a few minutes before washing with Oxyclean. For those fearing cloth pads means ugly bloodstained pads, this is not the case. When I was soaking pads after use until washing I went over a year and a half without any stains and my pads were lighter and multicoloured. I always buy my oxyclean at costco since its the very best deal and in powder foarm since it works and is so much cheaper.
5) Disposable heat pads that are activated by air (will say on package) and NOT the ones they sell/show on lower pelvic area designed for period pain since I have always found them to be way too small. I like the ones that stick on that are for backs (however the one I will show a picture of have changed their back stickers to wraps). The wrap is nice if you plan on changing clothing often, but the stickers I generally stick to my skin or to a pain of yoga pants I am wearing. I simply use the back heat pads on my front, and although I don’t use these often I do use them when I have to me out and about while either on period or know period is coming from the pain. They help and get nice and hot and very discreet. Though I did learn this weekend that trying to save money by buying a lower name brand is not necessarily worth the savings.
will add more later but need out in the garden at the moment since pain meds finaly kicked in!
what are your endometriosis coping essentials?
Friday, December 4, 2009
To many updates for the moment
I have al lot of updates, but no time for them at the moment.
Updates include topics such as Scott (the love of my life), my bladder, my back, my pain, diet changes, plans, new drug prescribes I haven’t been able to fill just yet.
First off, I have a tens unit that someone gave me from free cycle (www.freecycle.org) that is enough to know they work, in fact used to work well. Now I need it to be stronger then the max strength seems to be capable of.
My back has been cramping loads lately, but it’s really low like in my hips sort of. TENS is on now and helping a little but not much and to be fair the back is generally better when I sit then standing. Even more specific then that my back is worse if I straighten the leg on whatever side it is affecting (learned that in bed the other morning). So saying it’s doing okay at the moment is not truly fair, the fact is I need a better one. I think its number one on my wish list for Christmas at this moment at least. Perhaps should point that out to Scott who seems to think I will do what I did last year again for him (go shopping with him 3days before Christmas and pick all my own gifts and then let him pay), it’s SO not happening this year. He can try on his own, I have made him loads of lists and where to get items, even stocking items so there should be no issues (and I use the places that are handy).
I still have to get him one more gift that on my mind but haven’t gotten to it yet, perhaps tomorrow I will.
Today I have been making, well starting the process of making truffles. That always fun, the next step is the messy one.
I have to convince myself to go out to the grocery store. It’s cold and I have no interest in that at the moment. I also have to find all library books so I can return them and pay fines today.
I hurt, I would like to take a Demerol for front pain but haven’t had any since Sunday night (half a pill), and would like to continue on this way. Not the being in pain, but being able to avoid the pain meds (other than my once daily). I think I shall out off shopping for a little bit at least and do some things in the living room that don’t evolve much moving for the sake of my back cramps, and my pelvic pain. Oh I can’t WAIT to try the new med (I know I just said I like avoiding meds, but this one is different. It should not affect my head/mood/thinking at all) It should help with pelvic pain and the bladder issues also very likely.
Though, I just realised one thing. Although it won’t likely effect my head at all it might still likely make climaxing difficult, just not in the way Demerol does (Demerol makes it so that it feels good but the brain/nerve connections needed to orgasm just can’t quite be made) where as this med might make feelings less pronounced. Who knows though?
Updates include topics such as Scott (the love of my life), my bladder, my back, my pain, diet changes, plans, new drug prescribes I haven’t been able to fill just yet.
First off, I have a tens unit that someone gave me from free cycle (www.freecycle.org) that is enough to know they work, in fact used to work well. Now I need it to be stronger then the max strength seems to be capable of.
My back has been cramping loads lately, but it’s really low like in my hips sort of. TENS is on now and helping a little but not much and to be fair the back is generally better when I sit then standing. Even more specific then that my back is worse if I straighten the leg on whatever side it is affecting (learned that in bed the other morning). So saying it’s doing okay at the moment is not truly fair, the fact is I need a better one. I think its number one on my wish list for Christmas at this moment at least. Perhaps should point that out to Scott who seems to think I will do what I did last year again for him (go shopping with him 3days before Christmas and pick all my own gifts and then let him pay), it’s SO not happening this year. He can try on his own, I have made him loads of lists and where to get items, even stocking items so there should be no issues (and I use the places that are handy).
I still have to get him one more gift that on my mind but haven’t gotten to it yet, perhaps tomorrow I will.
Today I have been making, well starting the process of making truffles. That always fun, the next step is the messy one.
I have to convince myself to go out to the grocery store. It’s cold and I have no interest in that at the moment. I also have to find all library books so I can return them and pay fines today.
I hurt, I would like to take a Demerol for front pain but haven’t had any since Sunday night (half a pill), and would like to continue on this way. Not the being in pain, but being able to avoid the pain meds (other than my once daily). I think I shall out off shopping for a little bit at least and do some things in the living room that don’t evolve much moving for the sake of my back cramps, and my pelvic pain. Oh I can’t WAIT to try the new med (I know I just said I like avoiding meds, but this one is different. It should not affect my head/mood/thinking at all) It should help with pelvic pain and the bladder issues also very likely.
Though, I just realised one thing. Although it won’t likely effect my head at all it might still likely make climaxing difficult, just not in the way Demerol does (Demerol makes it so that it feels good but the brain/nerve connections needed to orgasm just can’t quite be made) where as this med might make feelings less pronounced. Who knows though?
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