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I live in chronic pain. The reason for my pain, is Endometriosis. I was diagnosed through surgery when I was 17. I have decided to have this blog, so that those in my life can get a peek into my day to day issues that affect my life in every way.

Showing posts with label tumor. Show all posts
Showing posts with label tumor. Show all posts

Thursday, June 6, 2013

You never know how strong you are


I've always liked both variations of this quote "you never know how strong you are until strong is the only choice there is" and "you don't know how strong you are until you don't have a choice" The first one i likely slightly more but when i handed over the sharpie i totally drew a blank on the quote. I don't feel I'm in the situation of being super strong, life has shown me i am much stronger than i thought in some ways but not as much as this quote implies. Never the less i wanted to do some quote that i felt a connection too or had meaning to me, and this fit. I also fear that if my body continues on the path it is on of one issue after another this quote will have that much more meaning to me. I hope i don't have cancer, and i hope this upcoming lumpectomy doesn't alter how my chest looks too much (yes i know I'm overweight, but that could change with diet eventually, a maimed boob... stays maimed). As i was having photos taken anyways i thought i would do at least one sort-of "awareness" image/quote that would have meaning to others besides me.

I look forward to seeing the rest of the photos when Stacey is able to share them with me.



Sunday, May 26, 2013

Boobie Situation Email Update April 27

Boobie update email i sent out as of April 27


"This is an update email, even though i don't feel like there is much to update about. So this is i guess a non-update update. I am sending this because even though there is not much new health related info i know some of what is going on was shared and either details were not expressed clearly or the wrong information was given out. So once again i state as clear as possible, i am being this open about my current health situation so that, that exact scenario doesn't happen.  (That being incorrect information given to others, something i don't want happening).

For those who didn't get my 1st email update about what's been going on i will add it as an attachment you can look over (as this is not an email, i already uploaded the original email to the blog, its the last post), for those who already know was going on here goes the "update" as of today.

April 2nd i went in for my breast MRI (that was ordered by a general surgeon so he'd have the images before meeting me). I had been waiting over 2 weeks since the MRI expecting a call from the surgeons office to be given an appointment as i had been told i would get one as soon as they had received my results. When i gave in and called the surgeons office i was told they hadn't yet received the MRI results as were still waiting, but gave me an appointment anyways, one that was far enough away that they thought they would for sure have the results by then. The appointment they gave me (my pre-op appointment) is may 6th. The next day i called the MRI clinic and asked about my results, they say they had already been sent weeks ago so who knows who dropped that ball, thankfully they sent the mri results again, and this time i know the surgeon has them (as of this past Tuesday April 23rd). This past Friday i was still hoping now that the surgeon had the imaging that they might contact me with a closer appointment and on that hope i put off sharing the date i currently did know with some family who i know wants to know as much as possible in case it the date changed and hoped to know everything (like if i did or did not have cancer) before the end of April so they could go on vacation knowing what the situation was. Clearly this won't be happening. 

 (this is how you look for a breast MRI)

So since the last mass email all thats really happened is i've had my MRI with and without contrast (went smoothly) and been given an appointment date of may 6th to meet my future surgeon (ended up not to be, but at this point i wrote this, this is what i understood). Somewhere in the middle of having my MRI and getting my next breast related appointment i got a copy of my biopsy report (or so i thought, turns out the reception at my family dr. doesn't know a biopsy repot with pathology vs a letter explaining the biopsy); it states  i have a papillary lesion in my left breast but beyond that it only explained how the biopsy was taken (core needle) and size (can't recall the exacts, and am not going to hunt down the photocopy right now either).

For those who want to know a little more;

"Papillary lesions are benign growths in the duct of the breast. They comprise approximately 1 to 3 percent of all lesions sampled by core needle biopsies. Certain breast lesions such as papillary lesions diagnosed as benign on core needle biopsy have cancer at surgical excision and thus should always be removed. The study shows that all papillary lesions of the breast should be surgically excised to avoid missing a cancer"

 When i know more, i will happily share more. Updates will follow my May6th appointment.


Other random tidbits:
Found someone i can get some of the post-op bras i need from :D without having to fork over $60-120 each for them YAY.


Now for my sap-fest:
 In the last Month or so I've also located someone local i can talk with about all of this who understands not only the "Boobie situation" as i like to call it, but the other side of my life, the one that doesn't just disappear because something more scary has shown up. She understands living each day in pain and not always being able to do what others can let alone what we ourselves might want to do on any given day (and by this i mean things like, go for a walk with your partner on a nice day, stand at the counter and wash dishes for a half hour, not exactly extraordinary things). I'm also very thankful for 2 other girlfriends, one i've known from grade 7 and another friend  who i've known less than a year and I am very thankful for their ability to talk me through some of my bigger meltdown days and dealing with some of the drama that apparently comes with multiple illnesses and a breast tumor haha. I'm very thankful for all the love and support i've received from my other friends and family. No matter the outcome of my future surgery i will no doubt keep needing this support so thank you for being there and understanding what i say in these updates, along with and why i a saying it all. S's been great with all of this, and i'm hopeful he will be able to be there for me when my surgery date comes, (either have the day off or can take it off) as i can no longer imagine going in that day without him beside me (this will of course depend on when they book me for surgery).

thanks again for reading this, if you are being sent this and you don't want to be getting these "updates" please simply email me back and let me know and i will make it so you won't receive these messages. (as your choosing to read this on my blog, this doesn't apply simply close the window if you dont want to read this)"

Original "Boobie Situation" Notification email



Trying to catch this blog up with what has been happening, the info is unlikely to come out in a smooth timeline but i will add dates and such. The issue is most of the time i was unwilling to write as things happened, other times i wrote about things right after but saved the wording without posting, so trying to get it uploaded now the best i can now that i am in a better place emotionally that i have been for the past 3months almost.

This is the email i wrote out ahead of time but sent out the same day my parents and Grandma learned about what i knew as of that moment. Original Email from March 30th 2013





<-- mammogram="" span="">

"Hello everyone, sending this to all I can that might otherwise hear this from someone else so may as well hear it from me, or to those who might care. For those of you who have been wondering what has been going on with me and why I am stressing well this is it.

This march I had breast cancer screening in the form of a mammogram for the first time in years simply as with my family history, medical history and lack of nursing a baby I am considered "high risk"
(add in self exams are next to usless for me imaging is the only real way for me to tell whats going on).  Shortly after my first appointment I was called back for further diagnostic imaging under the story line that "the first set of images weren't very clear", sure okay I didn't question that. When I came back for the 2nd set of mammogram films and later that same day an ultrasound I quickly clued in they were only looking at one side of my chest. By the end of the ultrasound it was very clear they found a lump, a lump that hurt and I could locate on my own now knowing where it was. They also informed me at the end of the ultrasound that I would need a biopsy. (i had felt this lump in the past, but i had felt 3 others recently too so thought nothing of it really as i can always find lumps due to fibrocystic breast)

Breast Ultrasound ---->


 Couple weeks later I had a core needle biopsy and began the dreaded wait for results, being hopeful the results would come in exactly a week later I booked an appointment ahead of time with my family dr., and to my surprise the results were already there, well somewhat. The dr. wouldn't go into much detail about what was found to be honest, I was told at best the tumor is pre-cancerous, at worst its cancer. They also said my file had been sent on to a surgeon who I was being referred to who would perform a lumpectomy on me and from there they would do farther testing once they had the tumor out. The doctor also told me as it stands the statistics I'm looking at are 60%cancer. 



< --- Core needle Biopsy guided by Ultrasound



What it sounds like after thinking about exactly what he did and didn't say to me is that the biopsy perhaps showed both pre-cancerous and cancerous tissue but unlike my dad's throat cancer scare a few years ago they don't want to tell me and get me all scared that there is cancer based on one cell found and then later go in only to discover there only was the one small spot of cancer and they managed to get it all in the biopsy.  Who knows for sure and I won't until after I have surgery. 

My plan was to keep everything to myself (and S and a few very close friends so I didn't go nuts) until I knew if I had cancer or not, that said I also figured I'd have that answer when the biopsy results came in and that I wouldn't be going through more testing and surgery before learning any more.

They already have a rushed appointment for my MRI scheduled this Tuesday (April 2, 2013) , and once the MRI results are in my future surgeons hands I have been told I will be getting an appointment and given my date for surgery. 

So no matter what I am having surgery, if no cancer s found than that's the end of it as far as I understand (besides continual screening) if cancer is found I might have to have more surgery to make sure they got every cell and chemo or radiation or both to treat me. As it stands I have no idea what will happen but as I am 26 with a sore tumor and know I will be having surgery on my breast it's a little frustrating to say the least (and when you add in my other health issues I seem to become a statistical anomaly how can i find myself with a breast tumor even if its "safe" endometriosis, IC and Fibro issues at times all before my 30th birthday it just seems wrong).

From this point I will be much more public about what is going on and trying to keep those who want to know up to date, although I wanted to talk to many people I had to keep it to myself until both S's parents and sister/my parents and my grandma Joan all knew first. Was not allowing the chance of any of them to hear it from someone else or hear something incorrect,  as if any of them heard it from someone else rather than me it would make the situation that much harder for me to explain, and for me sharing this information is what makes me feel more open about it and also gives me the ability to talk about that is going on and de-stress about it. Not going to lie I am hoping it's not cancer but time will tell.

For those of you who were questioning what was going on and thought I was pregnant, no that is not the case at all and should never be the case haha.

If you want to be one to be kept in the loop please make that clear and with what email to message updates at.

Thanks for reading. If you have any specific questions i will do my best to answer."