33-(10+5)= 18
So for the last year i have been on a drug i found out about online, thats not FDA aproved but is used as birthcontrol in India. I personaly dont trust it to keep me from being a mommy but i was on it for its side effect of a longer cycle.
Before i started the medication i has a 22-25 day cycle and in that cycle there was one week to ten days of pre-period pain and crazy pms, then there was 5-9days of heavy bleeding. However after i started this medication i think even my first cycle my cycle jumped to 30-33days, and after time my bleeding days shrunk to 3-5days.
Well, now the one doctor that my mom thinks might be able to do some problem solving for us (and my very cpmplicated case) says he wont touch my case and nore would any other doctor at least not while i on this medication.
For this reason i must get off the medication and go from a longer cycle that i always knew when to expect almost to a shorter cycle with more days bleeding and no idea when my period will come.
For your info the medication i was on is named Centchroman.
Thursday, April 22, 2010
Tuesday, April 20, 2010
Waiting
I am Waiting for my period at the moment
- My Chest is so tender that the weight of a hoody is painfull if i move the wrong way.
- My abdomen is so swollen and tender that it was rather tricky to get my socks on.
- My cravings are so nasty that are growsing even me out.
- I have what feels like stiff mucles all over neck, sholders, back, lower back and hips, but i think most of it is from likely being in pain while sleeping and moving around so much.
- My back is having megga back cramps but i am putting off pain meds for now.
- My hair is greecy because i havent been able to shower since i havent been able to stand up long enough, while i didnt have more important things to do.
- My face is one huge breakout that started before my cravings but is continueing likely because of my chocolate pigging out.
- I want to see if my package came in the mail yet but who much i am hobbiling while walking i am not willing to do right now in daylight while i will likely run into multible neighbours.
- My Chest is so tender that the weight of a hoody is painfull if i move the wrong way.
- My abdomen is so swollen and tender that it was rather tricky to get my socks on.
- My cravings are so nasty that are growsing even me out.
- I have what feels like stiff mucles all over neck, sholders, back, lower back and hips, but i think most of it is from likely being in pain while sleeping and moving around so much.
- My back is having megga back cramps but i am putting off pain meds for now.
- My hair is greecy because i havent been able to shower since i havent been able to stand up long enough, while i didnt have more important things to do.
- My face is one huge breakout that started before my cravings but is continueing likely because of my chocolate pigging out.
- I want to see if my package came in the mail yet but who much i am hobbiling while walking i am not willing to do right now in daylight while i will likely run into multible neighbours.
Sunday, April 18, 2010
Some of my Endometriosis Coping Essentials
1) One of the things I have used for the longest amount of time that I find very helpful since my periods have never like clockwork even while medically regulated.
a website : www.mymonthlycycles.com
I have used it for years so I can check when my last period was and also how long I was bleeding for and also how heavy I was bleeding and I can also add notes, all those features can be used with a free account and there is no time limit on using the site, though last week I did sign up for a 6month paid account since the features paying for look worth it to at least try out (will let people how I think it is later)
2) Rice bag heating pads, anyone who has endo knows of these unless they haven’t had their period very long at all. They can be bought in crafty type stores, online, through a pharmacy or you can even make them. They can get allot hotter than any water bottle and can hold heat longer and can be used often once after the other (though this will destroy them quicker but if you do destroy them you can always open them up, fill them again with some rice from your pantry, or cherry pits .... lots of options and sew it back up. I have made many and bought many, they come in all different shapes and materials.
3) Cloth pads, I started out with these when I was 19 I believe since wearing the disposable plastic ones just seemed to annoy me so much. For people who have a 2-3day period disposables wouldn’t seem as bad but for someone with a really heavy period to the point one must wear a pad when possibly it could arrive otherwise bleed through clothing on the way to the bathroom, and then when I was younger the normal 9 days of bleeding that was allot of time with pads on, and allot of garbage. It was generally about 14days of wearing pads give or take. So I started out making some and wearing them now and then and disposables now and then also. Now I generally buy my pads and they are amazing quality that way and last for a long time (haven’t worn one out yet). With care it is possible to even have unstained ones thanks to something else on my list. Cloth pads also fold up small and wet bags can be bought to store them in. They are very comfortable and can be bought/made to fit your needs or wants.
I have bought mine from:
www.lolasloft.etsy.com/ (just bought from, haven’t yet seen or used her pads)
www.NaturallyHip.etsy.com/ (bought from before, larger really indestructible pads)
www.crea8tivemama.etsy.com/ (bought from before, small pads)
Folded:
Wings Snaped so instead of sticky wings these secure the pad to panties these hold it in place:
4) For all of my cleaning bloodstain needs, come on girls you know this happens Oxyclean powder does the trick! Now that I use cloth pads I actually have fewer leaks because I have pads the size I need so my normal clothes need less stain removing however now I have those pads to clean. For stain free items you can get bloodstains wet hopefully before they dry and then wash in the machine with some Oxyclean and no worries about washing them with other items as long as they are not white. This also works for bedding or loungewear or bed pad (I just use a huge towel double folded under me when I sleep. The fact though is Oxyclean can very often remove old dried bloodstains even in pads. Simply soak item in water for a few minutes before washing with Oxyclean. For those fearing cloth pads means ugly bloodstained pads, this is not the case. When I was soaking pads after use until washing I went over a year and a half without any stains and my pads were lighter and multicoloured. I always buy my oxyclean at costco since its the very best deal and in powder foarm since it works and is so much cheaper.
5) Disposable heat pads that are activated by air (will say on package) and NOT the ones they sell/show on lower pelvic area designed for period pain since I have always found them to be way too small. I like the ones that stick on that are for backs (however the one I will show a picture of have changed their back stickers to wraps). The wrap is nice if you plan on changing clothing often, but the stickers I generally stick to my skin or to a pain of yoga pants I am wearing. I simply use the back heat pads on my front, and although I don’t use these often I do use them when I have to me out and about while either on period or know period is coming from the pain. They help and get nice and hot and very discreet. Though I did learn this weekend that trying to save money by buying a lower name brand is not necessarily worth the savings.
will add more later but need out in the garden at the moment since pain meds finaly kicked in!
what are your endometriosis coping essentials?
a website : www.mymonthlycycles.com
I have used it for years so I can check when my last period was and also how long I was bleeding for and also how heavy I was bleeding and I can also add notes, all those features can be used with a free account and there is no time limit on using the site, though last week I did sign up for a 6month paid account since the features paying for look worth it to at least try out (will let people how I think it is later)
2) Rice bag heating pads, anyone who has endo knows of these unless they haven’t had their period very long at all. They can be bought in crafty type stores, online, through a pharmacy or you can even make them. They can get allot hotter than any water bottle and can hold heat longer and can be used often once after the other (though this will destroy them quicker but if you do destroy them you can always open them up, fill them again with some rice from your pantry, or cherry pits .... lots of options and sew it back up. I have made many and bought many, they come in all different shapes and materials.
3) Cloth pads, I started out with these when I was 19 I believe since wearing the disposable plastic ones just seemed to annoy me so much. For people who have a 2-3day period disposables wouldn’t seem as bad but for someone with a really heavy period to the point one must wear a pad when possibly it could arrive otherwise bleed through clothing on the way to the bathroom, and then when I was younger the normal 9 days of bleeding that was allot of time with pads on, and allot of garbage. It was generally about 14days of wearing pads give or take. So I started out making some and wearing them now and then and disposables now and then also. Now I generally buy my pads and they are amazing quality that way and last for a long time (haven’t worn one out yet). With care it is possible to even have unstained ones thanks to something else on my list. Cloth pads also fold up small and wet bags can be bought to store them in. They are very comfortable and can be bought/made to fit your needs or wants.
I have bought mine from:
www.lolasloft.etsy.com/ (just bought from, haven’t yet seen or used her pads)
www.NaturallyHip.etsy.com/ (bought from before, larger really indestructible pads)
www.crea8tivemama.etsy.com/ (bought from before, small pads)
Folded:
Wings Snaped so instead of sticky wings these secure the pad to panties these hold it in place:
4) For all of my cleaning bloodstain needs, come on girls you know this happens Oxyclean powder does the trick! Now that I use cloth pads I actually have fewer leaks because I have pads the size I need so my normal clothes need less stain removing however now I have those pads to clean. For stain free items you can get bloodstains wet hopefully before they dry and then wash in the machine with some Oxyclean and no worries about washing them with other items as long as they are not white. This also works for bedding or loungewear or bed pad (I just use a huge towel double folded under me when I sleep. The fact though is Oxyclean can very often remove old dried bloodstains even in pads. Simply soak item in water for a few minutes before washing with Oxyclean. For those fearing cloth pads means ugly bloodstained pads, this is not the case. When I was soaking pads after use until washing I went over a year and a half without any stains and my pads were lighter and multicoloured. I always buy my oxyclean at costco since its the very best deal and in powder foarm since it works and is so much cheaper.
5) Disposable heat pads that are activated by air (will say on package) and NOT the ones they sell/show on lower pelvic area designed for period pain since I have always found them to be way too small. I like the ones that stick on that are for backs (however the one I will show a picture of have changed their back stickers to wraps). The wrap is nice if you plan on changing clothing often, but the stickers I generally stick to my skin or to a pain of yoga pants I am wearing. I simply use the back heat pads on my front, and although I don’t use these often I do use them when I have to me out and about while either on period or know period is coming from the pain. They help and get nice and hot and very discreet. Though I did learn this weekend that trying to save money by buying a lower name brand is not necessarily worth the savings.
will add more later but need out in the garden at the moment since pain meds finaly kicked in!
what are your endometriosis coping essentials?
Tuesday, March 23, 2010
quick update
Last night pain would randomly show up, in fact thats the way it had been since last friday night i would randomly have pain spikes and then it would lay off.
When i learned last night that the period was for sure on its way, i made sure to set out pain meds, a juice box, a clock and a flashlight on my side of the bed so if the pain woke me up i could take care of my self rather then needing to wake up scott to get me the nessisary items.
Although i didnt wake up from pain, but rather his alarm clock i am glad i was prepared because 2seconds after i woke up my body started to reconise how much pain i was in. Now i am at the point i am on my max demerol dose (2x 50mg) every 4hours (havent hit for hours) and yet i am still in a lot of pain. I am not moving around since that makes it feel even worse.
I beleive my period showed up early but because of when the ealry pain started i thought it might be showing up early. I still have to check www.mymonthlycycles.com to check that it was forsure early though.
Its been a long time since i have done any updates so i might do a none pain/period update later today also, of resources or Endometriosis awarness month typ information.
When i learned last night that the period was for sure on its way, i made sure to set out pain meds, a juice box, a clock and a flashlight on my side of the bed so if the pain woke me up i could take care of my self rather then needing to wake up scott to get me the nessisary items.
Although i didnt wake up from pain, but rather his alarm clock i am glad i was prepared because 2seconds after i woke up my body started to reconise how much pain i was in. Now i am at the point i am on my max demerol dose (2x 50mg) every 4hours (havent hit for hours) and yet i am still in a lot of pain. I am not moving around since that makes it feel even worse.
I beleive my period showed up early but because of when the ealry pain started i thought it might be showing up early. I still have to check www.mymonthlycycles.com to check that it was forsure early though.
Its been a long time since i have done any updates so i might do a none pain/period update later today also, of resources or Endometriosis awarness month typ information.
Friday, January 8, 2010
ugh!
i really only deal with one painfull thing at a time overly well.
Becayse of this i am not dealing well at the moment.
My abdomen is really very swollen, so that is painfull to have anything touching it or moving at all.
I have a cold so it seems every mucel and bone in my body hurts and is acheing.
I have hickups that are really hurting with the whole swollen and looking preggers thing.
I feel exausted even though i got 13hours of sleep (broken up but still).
And my nose wont stop running. There is a good thing about the nose though, it seems to suggest the whole body acheing might be because of a cold and not something elce messing with me so it should clear up shortly i can hope.
Becayse of this i am not dealing well at the moment.
My abdomen is really very swollen, so that is painfull to have anything touching it or moving at all.
I have a cold so it seems every mucel and bone in my body hurts and is acheing.
I have hickups that are really hurting with the whole swollen and looking preggers thing.
I feel exausted even though i got 13hours of sleep (broken up but still).
And my nose wont stop running. There is a good thing about the nose though, it seems to suggest the whole body acheing might be because of a cold and not something elce messing with me so it should clear up shortly i can hope.
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