I live in chronic pain. The reason for my pain, is Endometriosis. I was diagnosed through surgery when I was 17. I have decided to have this blog, so that those in my life can get a peek into my day to day issues that affect my life in every way.
Thursday, October 27, 2011
because of a recent comment i got i will soon be doing a post about how i came to be "diagnosed" with IC (or whatever it is) and the tricks and solutions of medications and things i do to help with the pain and urgency. just have to get the information together and the goods and bads about each medication (for those of you in the usa 2 of the 3 i use you can simply go buy at the store. those in canada like me only 1 of the 3 can you go buy... however if you have friends who go to the USA every now and then you can get the 2nd medication brought home to you) will go into all this more later.
Friday, October 21, 2011
1. The illness I live with is: Endometriosis, Interstitial Cystitis, 2. I was diagnosed with it in the year: 2005 for endo, 2010 for IC 3. But I had symptoms since: 2001 for endo, 2008 for IC 4. The biggest adjustment I’ve had to make is: Not being able to be "normal". Achievements such as finishing college, having a job, having a social life are things that when others speak of or ask me about leave me fighting to keep it together. 5. Most people assume: No idea. Can't say for most people only one who has spoken their mind and they don't think i can be in that much pain or possibly have constant pain, and lecture about using pain medication yet didn't see a problem with taking theirs with a bottle of wine. 6. The hardest part about mornings are: sitting up to get moving, often i can be awake in bed without any pain when i first wake up since its as though the rest of me isn't fully awake, but once i move the nerves wake up and my reality comes rushing back. 7. My favorite medical TV show is: Grey's Anatomy 8. A gadget I couldn’t live without is: Toshiba Laptop, TENS unit, PS3 9. The hardest part about nights are: thinking back over the day and thinking i didn't mange to do anything useful or worthwhile. 10. Each day I take __ pills & vitamins: currently 1-5daily 11. Regarding alternative treatments I: liked acupuncture and many other things but $$ so right now DIY acupuncture and massage now and then along with herbs as needed. 12. If I had to choose between an invisible illness or visible I would choose: invisible since that's what i know. 13. Regarding working and career: sole crushing.... no idea, if in years able to work well, and drive perhaps a dula. 14. People would be surprised to know: That the thought of giving up occurs to me now and then, yet i am not depressed 15. The hardest thing to accept about my new reality has been: having all my goals postponed 16. Something I never thought I could do with my illness that I did was: last this long still smiling 17. The commercials about my illness: there are none that i have seen 18. Something I really miss doing since I was diagnosed is: diagnose date didn't make the change, the day the pain came did. but so many things. 19. It was really hard to have to give up: my education and physical strength. 20. A new hobby I have taken up since my diagnosis is: crafting, sewing/beading/wood carving/card making. 21. If I could have one day of feeling normal again I would: go camping, walk/hike the trails and horse back riding. 22. My illness has taught me: things that i would rather keep to myself. 23. Want to know a secret? I will never get over the heartbreak of having a hysterectomy. 24. But I love it when people: try to work with my reality (Anne and Jackie are great at that) 25. My favorite motto, scripture, quote that gets me through tough times is: "grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference. Living one day at a time; Enjoying one moment at a time;" 26. When someone is diagnosed I’d like to tell them: you can ask me anything as there are very often issues and symptoms never mentioned in literature or by doctors (about 5+a year ask about leg pain, or mention it not thinking it is connected to endo.) 27. Something that has surprised me about living with an illness is: its made me more creative. 28. The nicest thing someone did for me when I wasn’t feeling well was: Hold me. 29. I’m involved with Invisible Illness Week because: it will only stay invisible if no one tries. 30. The fact that you read this list makes me feel: warm