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I live in chronic pain. The reason for my pain, is Endometriosis. I was diagnosed through surgery when I was 17. I have decided to have this blog, so that those in my life can get a peek into my day to day issues that affect my life in every way.

Thursday, November 14, 2013


Today is 5months post-op Lumpectomy. One would think this should mean I'm healed, and my arm should be back to full use. Yet neither are true, i still have a wound healing (all be it small now), and i don't have full range of my arm, tons of nerve damage that wasn't caused by the surgery and soft tissue damage caused by both the surgery and more-so the post-op infection that ravaged my breast for 4+months...

Thanks so much surgeon for trying to sweep it under the rug that was exposed to an antibiotic resistant strain of Staph during my surgery..... where as a real thanks to the dr's who saw the mess didn't ignore the 2"x1"x4" open wound i had.

(This is about a month after the wound opened, this is after the wound packing was removed but before the home-care nurse cleaned out the wound. It looks disgusting, gag worthy even. Now please try imagining having that on your body for 4months, and someone coming in each day to clean it and than slowly push inside cotton ribbon (or other packing) to fill the wound, so now your breast has a large hole but as literally been stuffed and you can feel it. The nastiness you see in the wound, yes that's chunks of puss deeper in the wound as it acted like a bowl there was much more that only would come apparent when arigated by sailine and would slip out.)

Thanks to it being ignored for so long with an infection i have a far larger area of no feeling on my skin (mapped the numb areas all along), yet i feel pain in my breast most of the time now, often enough to distract me or make me clutch myself instinctively, i also have a very large amount of nerve damage in my breast that leaves me with a burning feeling most all of the time if it weren't for a high dose of a neuropathic pain medication, even still i feel burning at times in my breast and into my armpit.

Also they suspect the fact i still have a fever daily after the infection is gone is thanks to all the "trama" my body went through this summer. My body's temperature regulating is now out of whack so i have been told it may take months for my temperature to come even close to what my normal baseline temp was originally.The extended fever also seems to have caused a murmur that i didn't have before.

Not exactly what i was expecting 5months post-op

3 comments:

  1. This reminds me of what my wound looked like after I had a sebaceous cyst removed from under my right breast. It was also an open-wound which I had to pack daily with gauze. But I didn't get the nasty infection that you did. :(

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  2. Can you please email I have some questions for you my daughter seems to be having the same wound that you have or had and she's just 2 the doctors can't and haven't diagnosed her with anything and I just want answers please email me at veros95@gmail.com

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  3. You are very brave and resistant my little girl. at such young age you have to undergo such pain and suffering, you are very brave my little princess. god bless you and i really pray to god that you get well really soon and heel very fast and live a normal life litlle princess. god bless you little soldier. get well really really faaast.

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