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I live in chronic pain. The reason for my pain, is Endometriosis. I was diagnosed through surgery when I was 17. I have decided to have this blog, so that those in my life can get a peek into my day to day issues that affect my life in every way.

Sunday, May 26, 2013

Boobie- situation May 24th

This update i wrote after getting home from the most recent surgeon (and the next morning), later i will go back and write an actual post about each surgeon apt in more in depth if only so others can know that if your truly uncomfortable because of a surgeon or the idea of them cutting you open terrifies you because of them (and not the idea of surgery itself) its worth being stuburn about seeing someone else. Might not always work but i am currently very glad i stuck with my feelings and thoughts.

                   "Boobie- situation update as of May 24th

Today I met a third general surgeon (or 4th doctor) in 3weeks. What a month, well last few months being told I have a lump, found by a total fluke and oh by the way you might have cancer in addition to everything else. My coping skills with any stressors have sort-of disappeared and because of the level of anxiety it seems some of my medications for other health issues have quit working of course leaving me more uncomfortable and on edge, but with where things are now I am hoping I can get back to at least a reasonable level of managing life again.

found a surgeon I like, and who is able to do the surgery, surgery is booked. Will have tumor removed at Guelph general hospital June 14th.

1st surgeon (out of Kitchener) as I said in last message left me more confused, unsure and scared (and also made it clear that he had no concern or care about how surgery would leave me looking as he “knows many women with breast cancer and none of them care how they look, they are all just very happy to be alive”), my issue with that quote is from the women I know it’s wrong, second we don’t even know if I have cancer yet so a 3-5” scar across the top would leave me upset, extra if I know it’s possible to be avoided. There were other issues with him but the one that I think might bring the best understanding is that reading size 12font with glasses on seemed impossible for him. I left the appointment of meeting this dr. in tears as I had no idea how tricky it might be to try to see another surgeon. All in all I did not want that dr cutting on me. 


Grand River Hospital Kitchener

Luckily my family dr. had no issue giving me another referral once I stated I was uncomfortable with the first surgeon. My discomfort was enough for him without logical reasons to back it up.



 Groves Memorial Hospital Fergus


 2nd surgeon (from Fergus) I really liked. She couldn’t do the surgery however, or at least not in the best way. Due to my situation* for surgery they need a wire-localization done before I go in the OR and with the Fergus hospital smaller than most, they don’t have the equipment. She could do surgery on my but would have to do so blindly, cut out more and hope for the best. Doing so means she would do her best but without a way to get visuals in the OR or have it marked for her she could miss part or all of the tumour and I’d have to have a 2nd surgery. For this reason she said although she could do the surgery it wasn’t good patient care when other doctors could do it with better odds of doing it right, she said she’s refer me to one of 2 surgeons in Guelph that she liked and sent women in my situation to. That said I was still debating if I’d go with her as she made me feel much more relaxed about everything and in charge of the situation. 


Guelph General Hospital

3r surgeon (from Guelph) I met yesterday afternoon. Not only does she make me feel relaxed, normal and such I feel confident she will do surgery well and she is the one who brought up the *idea* of trying to make it so hopefully I won`t look much different after the surgery, and discussed how she would go about that. She also was the first person to take into consideration the medications I’m on and conclude I should perhaps talk to the anesthesiologist so they understand what I’m on and a better plan can be worked out. Surgery with her has been booked.

So this is the timetable:

1.       ________ (will learn apt date/time next week) Will meet with the anesthesiologist who will be in my surgery at Guelph G.H. to go over my medications, what I should or shouldn’t take the day or the week of surgery (as some of my medications are in patch form).

2.      ________ (will learn apt date/time next week) Pre-op clinic appointment. Will have blood work done, oxygen levels taken, height/weight/pulse, and other questions asked. I will be told how to prepare for surgery, what to expect and discharge plan.

3.      June 14th  ____ (morning don’t k now time yet) Will go to Guelph General Hospital to have my wire localization procedure done by radiologist. If unsure what this is and care to know more:







4.      June 14th 10:15am have to be in Guelph general Day-surgery wing for prepping to start

5.      June 14th  12:15pm Left Breast excisional biopsy with preoperative wire localization surgery will begin. Basically it’s a lumpectomy but as the tumor their excising still needs farther studying to know if I have cancer or not it’s called an excisional biopsy. The surgery should take under 60minutes. The incision will try to be hidden as best as possible, if it is possible in order to conserve my present appearance. After surgery I will be moved to recovery where I will wake up, and after I am alert enough to leave, and able regain control over my body parts that might have been impaired due to aspects of surgery I will be sent home. S will be at the hospital for much of the day and will be bringing me back home that afternoon or evening as long as all goes to plan. If anyone wants to reach us he will likely be playing on his cellphone whenever possible to kill time, and unless for some reason we get home really late or something unexpected happens he will likely be checking his email/Facebook when home that evening, and possibly mine.


6.      June 27th Post-op appointment to see how I am healing and such IF pathology on my tumor is back at this point this is also where I will learn what the tumor was and if cancer/malignant what will happen next as that would possibly mean more surgery. If pathology is not yet back than I guess I wait till it is and learn the results from my family dr. perhaps.

* my situation is not only is my tumor not very large so hard to locate for others by touch who don’t feel pain once they locate it, I also have fibrocystic breasts so it is not the only lump they can feel the last to surgeons both agree it’s in the midst of 3-5 lumps they can feel, some larger that the tumor that their concerned about. This also allows them to understand why at 19, and again at 26 (and would have between if I had a local family dr.) I’ve gone for breast imaging as self-breast exams for me are next to useless as I’ve always been able to find something it is just a matter of will it go away in a day, week, or few months. The tumor they are worried about I’d felt before and that left me feeling like I should have let them know sooner, but heck there are 3other lumps I’ve been able to find for the past 6months too depending on when I do a self-exam and none of them are anything to worry about so I can’t report every bump I find or I’d never leave the dr’s office.

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